So here’s what’s been happening since my last post in May. Nothing major, still just trucking along.
7th June
Chemo at Hastings - all went well, but Toby has started protesting pretty strongly about having finger pricks done / port accessed - this makes it quite difficult for the Nurses and horrible for me to watch.
4th July
Chemo at Starship - all went well.
Ronald McDonald House celebrated Independence Day today with volunteers Coca-Cola providing an American style dinner. It was so neat as they had decorated the dinning room with streamers, balloons etc in red, white and blue - it looked so cool and almost brought me to tears seeing how much effort had been put into giving the families such a fun night. They also had a clown making balloons for the kids.
When we got to the Airport on the Thursday to go home we found out that heavy fog cancelled our flight home which created a bit of a drama!! We managed to get a taxi back to RMH where they found us another room and we just had to wait it out until flights became available. No one really knew when flights would be going again and I just wanted to get home (and was running out of clothes, food etc!!), we had the option of going via bus the next day but I wasn’t too keen on that option considering it was a 7 hour bus drive with a 3 year old!!!!! So we opted to take a 2 hour bus trip to Hamilton and my darling husband picked us up from there (after I twisted his arm big time!!!!!). We arrived home about 8:30pm absolutely shattered; it was so good to be home.
12th July
Toby developed a nasty cough again so we headed over to
17th July
Toby’s cough wasn’t getting any better so it was off the Hastings Hospital again where this time a chest x-ray was done, Antibiotics were changed to a stronger type and we were sent home again. I was told 10 days later that it was most likely Pneumonia that he had but that wasn’t mentioned at the time grrrrrrrrrrr!!!!
2nd August
Chemo at Hastings Hospital - all went well.
30th August
Chemo at Hastings Hospital - all went well (apart from the biggest screaming, crying and kicking performance from Toby EVER!!!). Poor little bugger.
9th September
Our baby turned 4 years old!!!! He had a fantastic Batman party and celebrated with friends and family.
10th September
10th September
Toby had a really nasty coughing fit an hour after he went to bed. It came from nowhere and scared the crap out of me - I really thought I needed to call an Ambulance - he just couldn’t catch his breath. I rushed him over to Hastings Hospital (by which time he had come right). His oxygen levels were up and down so we were admitted for the night and sent home in the morning on another course of Antibiotics.
26th September
Due in Starship for his 3 monthly check-up and spinal chemo.

