It is SO good to be home, sleeping in our own beds and not having to share a toilet, shower and kitchen with the rest of the parents at Starship!!!
Toby is doing very well considering what he is going through. He is a bit whingey, super hungry from the steriods (and only wants to eat chippies and plain ice cream cones!!!) and he has trouble walking which is a side effect of the Chemo affecting the nerves.
Toby is given a steriod twice daily (this is for the first month of treatment). This makes him hungry, moody and unpredictable, unable to sleep and makes his face chubby (known as 'moon face'). Twice daily on Saturdays and Sundays only, he takes another medicine that helps to prevent a form of Pneumonia - he will take this medicine for the entire treatment period (approx 3 1/2 years).
At the moment he still has all his lovely blonde hair - I am dreading him loosing this :(
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