Day 1 of the Standard Delayed Intensification Phase……..

We were due at Starship on Monday 14^th March to begin the SDI Phase which lasts for 8 weeks, but due to the Theatre schedule being too busy we were put off for a couple of days.

In the meantime Toby got his cast off after 4 weeks and 4 days (which was a hideously long time!!!).  He was very brave and didn’t even cry when the big noisy saw cut off his cast - the ladies in the fracture clinic said they have NEVER seen a kid of his age so calm during a cast removal :)  He has had the cast off for over a week now, but still isn’t walking which they said is normal.  He can crawl pretty fast though and it is so much easier for me to carry him around!!!

On Wednesday 16^th we headed up to Starship for a Clinic visit.  This time Bevan and Sam came with Toby and I so that Sam could finally see what happens when Toby goes for treatment etc.  On Thursday Toby went to Theatre for another Lumbar Puncture and afterwards had two lots of Chemo.  One was a drug he had never had before (Doxorubicin) but he tolerated it well.  He also started on a 1 week course of steroids.

We stayed on until Saturday afternoon and had a great little family holiday.  We visited the Auckland Zoo, MOTAT, Kelly Tarltons, the top of the Sky Tower and met up with friends at the Auckland Museum.  It was an awesome trip and it was so good to spend some quality family time together (well after all the yucky bits were over and done with at the Hospital!!!!).