October / November / December 2011 Update………….

Since my last post things Toby has been doing pretty well.  His nasty cough has continued to come and go which is always a bit of a worry, but numerous x-rays have been taken and there isn’t really much that can be done other to put him on Antibiotics as a precaution when it flares up.

September 29^th Toby had his routine monthly Chemo at Hastings Hospital - all went well.

October 26^th / 27^th we went to Starship for Toby’s 3 monthly trip to see his Specialist and to have his Chemo via Lumbar Puncture - all went well.

November 11^th Toby’s temperature got up to 39.3 so he was admitted to Hastings Hospital for 3 nights for IV Antibiotics.  It was a bit of a nightmare stay as he was so full of beans that he almost drove me insane being stuck in the tiny Hospital room!!!

November 24^th Routine monthly Chemo at Hastings Hospital - all went well.  Bloods showed Toby’s immunoglobulins are low so he may been given a boost of these next time he has Chemo.

November 29^th I had a call from Starship to say that they would like Toby’s oral Chemo dose increased a little to see how his body reacts.  Before now he was only on around 75% dosage for his age as it kept knocking his neutrophils (immunity) too low.  Will be interesting to see how he goes.

November 30^th Toby’s cough got quite bad and his temperature got up to 39.1.  He had some bloods taken at Hastings Hospital which showed he wasn’t Neutropenic (low immunity), so he was able to come home with oral antibiotics - whew!!!

December 8^th Bloods taken to check levels and all looking good :)

Toby is due for his monthly Chemo at Hastings Hospital on 22^nd December and then we are due in Starship for his 3 monthly trip on the 18^th / 19^th January 2012.